Quality of life assessment instruments for adults: a systematic review of population-based studies

Background: Against a backdrop of population aging and improving survival rates for chronic noncommunicable diseases (CNCD), researchers are placing growing emphasis on health-related quality of life (HRQoL). The aim of this study was to identify the QoL assessment instruments used in population-bas...

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Principais autores: Lyra, Clélia de Oliveira, Pequeno, Nila Patrícia Freire, Cabral, Natália Louise de Araújo, Marchioni, Dirce Maria, Lima, Severina Carla Vieira Cunha
Formato: article
Idioma:English
Publicado em: Health and Quality of Life Outcomes
Assuntos:
Quality of life
Health-related quality of life
Population surveys
Systematic review
Endereço do item:https://repositorio.ufrn.br/handle/123456789/57949
http://dx.doi.org/10.1186/s12955-020-01347-7
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spelling ri-123456789-579492024-03-26T20:40:55Z Quality of life assessment instruments for adults: a systematic review of population-based studies Lyra, Clélia de Oliveira Pequeno, Nila Patrícia Freire Cabral, Natália Louise de Araújo Marchioni, Dirce Maria Lima, Severina Carla Vieira Cunha Quality of life Health-related quality of life Population surveys Systematic review Background: Against a backdrop of population aging and improving survival rates for chronic noncommunicable diseases (CNCD), researchers are placing growing emphasis on health-related quality of life (HRQoL). The aim of this study was to identify the QoL assessment instruments used in population-based studies with adults conducted around the world. Methods: A systematic review of original research published in all languages between 2008 and 2018 was conducted. Systematic reviews and meta-analyses were excluded. Results: Sixty-three articles (38.1% conducted in the Americas) fitted the eligibility criteria. Based on the AHRQ checklist for cross-sectional studies and the Newcastle-Ottawa scale for cohort studies, methodological quality was shown to be fair in the majority of studies (55.6%) and good in 44.4%. The country with the highest number of publications was Brazil (20.6%). Twelve types of generic instruments and 11 specific instruments were identified. The generic instrument SF-36 was the most frequently used measure (33.3% of studies). In-home interviewing was exclusively used by 47.6% of the studies, while 39 studies (61.9%) reported the use of self-administered questionnaires. Over two-thirds of the studies (34.9%) used questionnaires to investigate the association between chronic diseases and/or associated factors. Conclusions: It was concluded that the wide range of instruments and modes of questionnaire administration used by the studies may hinder comparisons between population groups with the same characteristics or needs. There is a lack of research on QoL and the factors affecting productive capacity. Studies of QoL in older persons should focus not only on the effects of disease and treatment, but also on the determinants of active aging and actions designed to promote it. Further research is recommended to determine which QoL instruments are best suited for population-based studies. 2024-03-26T20:40:54Z 2024-03-26T20:40:54Z 2020-06 article PEQUENO, Nila Patrícia Freire; CABRAL, Natália Louise de Araújo; MARCHIONI, Dirce Maria; LIMA, Severina Carla Vieira Cunha; LYRA, Clélia de Oliveira. Quality of life assessment instruments for adults: a systematic review of population-based studies. Health and Quality of Life Outcomes, [S.l.], v. 18, n. 1, p. 1-13, 30 jun. 2020. DOI: 10.1186/s12955-020-01347-7. Disponível em: https://hqlo.biomedcentral.com/articles/10.1186/s12955-020-01347-7. Acesso em: 14 mar. 2024. https://repositorio.ufrn.br/handle/123456789/57949 http://dx.doi.org/10.1186/s12955-020-01347-7 en Attribution 3.0 Brazil http://creativecommons.org/licenses/by/3.0/br/ application/pdf Health and Quality of Life Outcomes
institution Repositório Institucional
collection RI - UFRN
language English
topic Quality of life
Health-related quality of life
Population surveys
Systematic review
spellingShingle Quality of life
Health-related quality of life
Population surveys
Systematic review
Lyra, Clélia de Oliveira
Pequeno, Nila Patrícia Freire
Cabral, Natália Louise de Araújo
Marchioni, Dirce Maria
Lima, Severina Carla Vieira Cunha
Quality of life assessment instruments for adults: a systematic review of population-based studies
description Background: Against a backdrop of population aging and improving survival rates for chronic noncommunicable diseases (CNCD), researchers are placing growing emphasis on health-related quality of life (HRQoL). The aim of this study was to identify the QoL assessment instruments used in population-based studies with adults conducted around the world. Methods: A systematic review of original research published in all languages between 2008 and 2018 was conducted. Systematic reviews and meta-analyses were excluded. Results: Sixty-three articles (38.1% conducted in the Americas) fitted the eligibility criteria. Based on the AHRQ checklist for cross-sectional studies and the Newcastle-Ottawa scale for cohort studies, methodological quality was shown to be fair in the majority of studies (55.6%) and good in 44.4%. The country with the highest number of publications was Brazil (20.6%). Twelve types of generic instruments and 11 specific instruments were identified. The generic instrument SF-36 was the most frequently used measure (33.3% of studies). In-home interviewing was exclusively used by 47.6% of the studies, while 39 studies (61.9%) reported the use of self-administered questionnaires. Over two-thirds of the studies (34.9%) used questionnaires to investigate the association between chronic diseases and/or associated factors. Conclusions: It was concluded that the wide range of instruments and modes of questionnaire administration used by the studies may hinder comparisons between population groups with the same characteristics or needs. There is a lack of research on QoL and the factors affecting productive capacity. Studies of QoL in older persons should focus not only on the effects of disease and treatment, but also on the determinants of active aging and actions designed to promote it. Further research is recommended to determine which QoL instruments are best suited for population-based studies.
format article
author Lyra, Clélia de Oliveira
Pequeno, Nila Patrícia Freire
Cabral, Natália Louise de Araújo
Marchioni, Dirce Maria
Lima, Severina Carla Vieira Cunha
author_facet Lyra, Clélia de Oliveira
Pequeno, Nila Patrícia Freire
Cabral, Natália Louise de Araújo
Marchioni, Dirce Maria
Lima, Severina Carla Vieira Cunha
author_sort Lyra, Clélia de Oliveira
title Quality of life assessment instruments for adults: a systematic review of population-based studies
title_short Quality of life assessment instruments for adults: a systematic review of population-based studies
title_full Quality of life assessment instruments for adults: a systematic review of population-based studies
title_fullStr Quality of life assessment instruments for adults: a systematic review of population-based studies
title_full_unstemmed Quality of life assessment instruments for adults: a systematic review of population-based studies
title_sort quality of life assessment instruments for adults: a systematic review of population-based studies
publisher Health and Quality of Life Outcomes
publishDate 2024
url https://repositorio.ufrn.br/handle/123456789/57949
http://dx.doi.org/10.1186/s12955-020-01347-7
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