Improving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental study

Caring for a person with dementia burdens family caregivers, and there is a close negative relationship between this burden and their quality of life (QoL). Research suggests that caregivers’ main needs are information and training about the disease and support from others experiencing the same situ...

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Principais autores: Souza, Dyego Leandro Bezerra de, Mas, Montse Romero, Aribau, Anna Ramon, Cox, Andrew M., Zúñiga, Beni Gómez
Outros Autores: https://orcid.org/0000-0001-8426-3120
Formato: article
Idioma:English
Publicado em: International Journal Of Alzheimer'S Disease
Assuntos:
quality of life of family
alzheimer
virtual communities
Endereço do item:https://repositorio.ufrn.br/handle/123456789/54841
https://doi.org/10.1155/2021/8817491
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spelling ri-123456789-548412023-09-14T16:23:42Z Improving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental study Souza, Dyego Leandro Bezerra de Mas, Montse Romero Aribau, Anna Ramon Cox, Andrew M. Zúñiga, Beni Gómez https://orcid.org/0000-0001-8426-3120 quality of life of family alzheimer virtual communities Caring for a person with dementia burdens family caregivers, and there is a close negative relationship between this burden and their quality of life (QoL). Research suggests that caregivers’ main needs are information and training about the disease and support from others experiencing the same situation, and Internet interventions hold considerable promise for meeting these needs. Virtual communities of practice (VCoPs) are Internet frameworks to share knowledge where members collaborate and achieve a sense of trust in the community. This paper seeks to evaluate the impact of participating in a VCoP (developed through an App) on the QoL of caregivers to people with Alzheimer’s. Results show QoL before and after the intervention changed significantly. The impact of VCoP on caregivers’ overall QoL is moderated by age and relation with the person with Alzheimer’s, specifically those over 65, and spouses. VCoPs allow interaction and knowledge sharing among caregivers which provide them mainly with information and support from peers helping them to meet their needs. Furthermore, caregivers’ QoL did not decrease when their relative deteriorated functionally, which could be due to the participation in VCoP. Although we found significant pre- and post differences in caregivers’ health literacy, we must report the ambiguous result that this variable only impacts on QoL’s physical domain. Participants also reported that they had a positive experience because the App was perceived to be a useful tool, because they could manage their own participation and they met peers and felt less lonely. Results suggest that participation in a VCoP impacts positively on caregivers’ QoL 2023-09-14T16:23:19Z 2023-09-14T16:23:19Z 2021 article SOUZA, Dyego Leandro Bezerra de; ROMERO-MAS, Montse; RAMON-ARIBAU, Anna; COX, Andrew M.; GÓMEZ-ZðÑIGA, Beni.Improving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental study. International Journal Of Alzheimer'S Disease, [S.L.], v. 2021, p. 1-10, 5 abr. 2021. Hindawi Limited. http://dx.doi.org/10.1155/2021/8817491. Disponível em: https://www.hindawi.com/journals/ijad/2021/8817491/. Acesso em: 05 set. 2023. https://repositorio.ufrn.br/handle/123456789/54841 https://doi.org/10.1155/2021/8817491 en https://creativecommons.org/licenses/by/4.0/ application/pdf International Journal Of Alzheimer'S Disease
institution Repositório Institucional
collection RI - UFRN
language English
topic quality of life of family
alzheimer
virtual communities
spellingShingle quality of life of family
alzheimer
virtual communities
Souza, Dyego Leandro Bezerra de
Mas, Montse Romero
Aribau, Anna Ramon
Cox, Andrew M.
Zúñiga, Beni Gómez
Improving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental study
description Caring for a person with dementia burdens family caregivers, and there is a close negative relationship between this burden and their quality of life (QoL). Research suggests that caregivers’ main needs are information and training about the disease and support from others experiencing the same situation, and Internet interventions hold considerable promise for meeting these needs. Virtual communities of practice (VCoPs) are Internet frameworks to share knowledge where members collaborate and achieve a sense of trust in the community. This paper seeks to evaluate the impact of participating in a VCoP (developed through an App) on the QoL of caregivers to people with Alzheimer’s. Results show QoL before and after the intervention changed significantly. The impact of VCoP on caregivers’ overall QoL is moderated by age and relation with the person with Alzheimer’s, specifically those over 65, and spouses. VCoPs allow interaction and knowledge sharing among caregivers which provide them mainly with information and support from peers helping them to meet their needs. Furthermore, caregivers’ QoL did not decrease when their relative deteriorated functionally, which could be due to the participation in VCoP. Although we found significant pre- and post differences in caregivers’ health literacy, we must report the ambiguous result that this variable only impacts on QoL’s physical domain. Participants also reported that they had a positive experience because the App was perceived to be a useful tool, because they could manage their own participation and they met peers and felt less lonely. Results suggest that participation in a VCoP impacts positively on caregivers’ QoL
author2 https://orcid.org/0000-0001-8426-3120
author_facet https://orcid.org/0000-0001-8426-3120
Souza, Dyego Leandro Bezerra de
Mas, Montse Romero
Aribau, Anna Ramon
Cox, Andrew M.
Zúñiga, Beni Gómez
format article
author Souza, Dyego Leandro Bezerra de
Mas, Montse Romero
Aribau, Anna Ramon
Cox, Andrew M.
Zúñiga, Beni Gómez
author_sort Souza, Dyego Leandro Bezerra de
title Improving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental study
title_short Improving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental study
title_full Improving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental study
title_fullStr Improving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental study
title_full_unstemmed Improving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental study
title_sort improving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental study
publisher International Journal Of Alzheimer'S Disease
publishDate 2023
url https://repositorio.ufrn.br/handle/123456789/54841
https://doi.org/10.1155/2021/8817491
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