Go zika go: estudo da viabilidade de carros de brinquedo motorizados modificados para a mobilidade de crianças com Síndrome Congênita do Zika (SCZ)
Introduction: The clinical characteristics of Congenital Zika Syndrome (CZS) include a series of impairments and delays, mainly in cognitive and motor aspects, with a similar picture to Cerebral Palsy (CP). The prognosis of the motor performance of children with SCZ raises questions about the pos...
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| Formato: | Dissertação |
| Idioma: | pt_BR |
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Universidade Federal do Rio Grande do Norte
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| Endereço do item: | https://repositorio.ufrn.br/handle/123456789/54508 |
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| Resumo: | Introduction: The clinical characteristics of Congenital Zika Syndrome (CZS) include a
series of impairments and delays, mainly in cognitive and motor aspects, with a similar
picture to Cerebral Palsy (CP). The prognosis of the motor performance of children
with SCZ raises questions about the possibilities of these children's participation in
everyday life. The literature points out that motorized mobility is a viable and effective
possibility of intervention for children with motor disabilities, with positive impacts on
general development, independent mobility, bodily functions, activities and
participation. The Go Zika Go project was created to provide children with SCZ with an
intervention model focused on participation results, using modified motorized toy cars,
seeking to test the feasibility of this intervention. Objective: To explore the feasibility of
a motorized mobility intervention for children diagnosed with SCZ without a prognosis
for ambulation, including acceptability and preliminary efficacy. Materials and Methods:
This is a feasibility study with a longitudinal design before and after the intervention,
carried out at the Clínica Escola de Fisioterapia of the Faculdade de Ciências da Saúde
do Trairi (Facisa/UFRN) with four children diagnosed with CZS. For this study,
adherence, measured by attendance at intervention sessions, satisfaction, measured
by the Quebec User Evaluation of Satisfaction with Assistive Technology (QUEST) and
Satisfaction Perception Questionnaire tools, and mobility learning, classified as by the
Assessment of Learning Powered Mobility (ALP). Secondary outcomes related to the
effect of the intervention were goal achievement assessed using the Goal Attainment
Scaling (GAS), mobility and social function using the Pediatric Evaluation of Disability
Inventory – Computer Adaptive-test (PEDI-CAT), and participation through the Young
Children's Participation and Environment Measure (YC-PEM) or Participation and
Environment Measure for Children and Youth (PEM-CY). The intervention with the
modified cars lasted 12 weeks of training and 4 weeks of follow-up, with a frequency
of three times a week and a dosage of 40 minutes. Descriptive statistical analyzes
were performed for sociodemographic data, children's motor classification, intervention
feasibility data (adherence, satisfaction data and learning with ALP), GAS, YCPEM/PEM-CY and PEDI-CAT. We also summarize the feasibility variables (recruitment, adherence, evaluation, safety and intervention costs) by relative and absolute frequencies. To explore the effects of the intervention, on the PEDI-CAT (mobility and social/cognitive), and the YC-PEM/PEM-CY data, the Wilcoxon test was
applied comparing the changes between week 0 before the intervention, and sixteen
weeks after the intervention, standard error measures were also used to verify changes
in the PEDI-CAT domains. Results: Median age of children with SCZ included in the
study was 4.75 years, two females and two males, 3 classified using the Gross Motor
Function Classification System (GMFCS) as level V and one as level V. I The results
showed adherence of 75% of the total intervention time, satisfied or very satisfied
family members, and gains in learning how to use cars after the intervention, indicating
that the Go Zika Go intervention is feasible. There was also an increase in the scope
of the targets established based on the GAS. Changes in PEDICAT medians and
participation outcomes were not statistically significant. Individual changes were
perceived by the standard error analyzes in the mobility and social/cognitive domains.
Conclusion: Intervention with modified toy cars proved to be feasible to provide children
with SCZ with goal achievement, satisfaction and learning to use the modified car. We
suggest the development of clinical trials to explore the effect of the intervention on the
functional gains and participation of children with SCZ. |
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