Communication difficulties perceived by mothers of children with suspected autism spectrum disorder during social distancing

Purpose: to characterize the perception of mothers of children at risk for Autism Spectrum Disorder about their children's communicative difficulties, and to investigate possible changes after intervention based on brief guidance by telemonitoring. Methods: eight mothers of children aged 32 to...

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Principais autores: Assenço, Ana Manhani Cáceres, Souza, Lidia Silva de, Balestro, Juliana Izidro
Outros Autores: https://orcid.org/0000-0003-2670-8245
Formato: article
Idioma:English
Publicado em: Revista Cefac
Assuntos:
transtorno do espectro autista
transtornos da comunicação
cuidadores
desenvolvimento infantil
desenvolvimento da linguagem
Autism Spectrum Disorder
caregivers
Communication Disorders
Language Development
Child development
Endereço do item:https://repositorio.ufrn.br/handle/123456789/52547
https://doi.org/10.1590/1982-0216/20222431422
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id ri-123456789-52547
record_format dspace
institution Repositório Institucional
collection RI - UFRN
language English
topic transtorno do espectro autista
transtornos da comunicação
cuidadores
desenvolvimento infantil
desenvolvimento da linguagem
Autism Spectrum Disorder
caregivers
Communication Disorders
Language Development
Child development
spellingShingle transtorno do espectro autista
transtornos da comunicação
cuidadores
desenvolvimento infantil
desenvolvimento da linguagem
Autism Spectrum Disorder
caregivers
Communication Disorders
Language Development
Child development
Assenço, Ana Manhani Cáceres
Souza, Lidia Silva de
Balestro, Juliana Izidro
Communication difficulties perceived by mothers of children with suspected autism spectrum disorder during social distancing
description Purpose: to characterize the perception of mothers of children at risk for Autism Spectrum Disorder about their children's communicative difficulties, and to investigate possible changes after intervention based on brief guidance by telemonitoring. Methods: eight mothers of children aged 32 to 45 months with suspected Autism Spectrum Disorder undergoing diagnostic investigation participated. The Communicative Difficulties Questionnaire was used, applied before and after intervention based on a brief telemonitoring guidance. The inferential analysis used the Wilcoxon rank test, at a significance level of 5%. Results: comparison between the two moments did not indicate statistically significant difference. However, there were changes in qualitative analysis. In domain 1, a change in mode was observed in two questions. Initially, in domain 2, a disagreeing mode was seen, which after the intervention evolved to agreeing about the feeling of other people avoiding/bullying their children. In domain 3, the question “I take all objects that my child points to” changed from agreeing to disagreeing (62.5% to 25%), and the question “I can't teach my child new things” had no change in mode, only a reduction of agreement (50% to 25%). In domain 4, there was a reduction in agreement, with no change in mode. Conclusions: the mothers perceived communicative difficulties and daily challenges in dealing with their children. Despite the lack of a statistical difference, qualitatively subtle changes were observed in the perceptions of difficulties, after the intervention.
author2 https://orcid.org/0000-0003-2670-8245
author_facet https://orcid.org/0000-0003-2670-8245
Assenço, Ana Manhani Cáceres
Souza, Lidia Silva de
Balestro, Juliana Izidro
format article
author Assenço, Ana Manhani Cáceres
Souza, Lidia Silva de
Balestro, Juliana Izidro
author_sort Assenço, Ana Manhani Cáceres
title Communication difficulties perceived by mothers of children with suspected autism spectrum disorder during social distancing
title_short Communication difficulties perceived by mothers of children with suspected autism spectrum disorder during social distancing
title_full Communication difficulties perceived by mothers of children with suspected autism spectrum disorder during social distancing
title_fullStr Communication difficulties perceived by mothers of children with suspected autism spectrum disorder during social distancing
title_full_unstemmed Communication difficulties perceived by mothers of children with suspected autism spectrum disorder during social distancing
title_sort communication difficulties perceived by mothers of children with suspected autism spectrum disorder during social distancing
publisher Revista Cefac
publishDate 2023
url https://repositorio.ufrn.br/handle/123456789/52547
https://doi.org/10.1590/1982-0216/20222431422
work_keys_str_mv AT assencoanamanhanicaceres communicationdifficultiesperceivedbymothersofchildrenwithsuspectedautismspectrumdisorderduringsocialdistancing
AT souzalidiasilvade communicationdifficultiesperceivedbymothersofchildrenwithsuspectedautismspectrumdisorderduringsocialdistancing
AT balestrojulianaizidro communicationdifficultiesperceivedbymothersofchildrenwithsuspectedautismspectrumdisorderduringsocialdistancing
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spelling ri-123456789-525472023-05-26T19:51:18Z Communication difficulties perceived by mothers of children with suspected autism spectrum disorder during social distancing Assenço, Ana Manhani Cáceres Souza, Lidia Silva de Balestro, Juliana Izidro https://orcid.org/0000-0003-2670-8245 transtorno do espectro autista transtornos da comunicação cuidadores desenvolvimento infantil desenvolvimento da linguagem Autism Spectrum Disorder caregivers Communication Disorders Language Development Child development Purpose: to characterize the perception of mothers of children at risk for Autism Spectrum Disorder about their children's communicative difficulties, and to investigate possible changes after intervention based on brief guidance by telemonitoring. Methods: eight mothers of children aged 32 to 45 months with suspected Autism Spectrum Disorder undergoing diagnostic investigation participated. The Communicative Difficulties Questionnaire was used, applied before and after intervention based on a brief telemonitoring guidance. The inferential analysis used the Wilcoxon rank test, at a significance level of 5%. Results: comparison between the two moments did not indicate statistically significant difference. However, there were changes in qualitative analysis. In domain 1, a change in mode was observed in two questions. Initially, in domain 2, a disagreeing mode was seen, which after the intervention evolved to agreeing about the feeling of other people avoiding/bullying their children. In domain 3, the question “I take all objects that my child points to” changed from agreeing to disagreeing (62.5% to 25%), and the question “I can't teach my child new things” had no change in mode, only a reduction of agreement (50% to 25%). In domain 4, there was a reduction in agreement, with no change in mode. Conclusions: the mothers perceived communicative difficulties and daily challenges in dealing with their children. Despite the lack of a statistical difference, qualitatively subtle changes were observed in the perceptions of difficulties, after the intervention. Objetivo: caracterizar a percepção das mães de crianças com risco para Transtorno do Espectro do Autismo acerca das dificuldades comunicativas dos seus filhos, e investigar possíveis mudanças após intervenção baseada em orientação breve via telemonitoramento. Métodos: participaram oito mães de crianças entre 32 e 45 meses com suspeita de Transtorno do Espectro do Autismo e em processo de investigação diagnóstica. Utilizou-se o Questionário sobre Dificuldades Comunicativas, aplicado antes e após intervenção baseada em orientação por telemonitoramento. A análise inferencial utilizou o teste de postos de Wilcoxon, com nível de significância de 5%. Resultados: a comparação entre os dois momentos não indicou diferença estatística. Porém, houve modificações na análise qualitativa. No domínio 1, observou-se mudança na moda em duas questões. No domínio 2 houve moda discordo inicialmente e, após intervenção, passou a concordo acerca da sensação de outras pessoas evitarem/zombarem seus filhos. No domínio 3, a questão “Pego todos os objetos que meu filho aponta” passou de concordo para discordo (62,5% para 25%) e a “Não consigo ensinar coisas novas para meu filho” não teve mudança na moda, apenas redução da concordância (50% para 25%). No domínio 4, houve redução de concordância, sem mudança da moda. Conclusões: as mães perceberam dificuldades comunicativas e desafios cotidianos para lidar com os filhos. Apesar da ausência de diferença estatística, qualitativamente observaram-se modificações sutis nas percepções das dificuldades após a intervenção. 2023-05-26T19:51:17Z 2023-05-26T19:51:17Z 2022 article SOUZA, Lidia Silva de; BALESTRO, Juliana Izidro; ASSENÇO, Ana Manhani Caceres. Communication difficulties perceived by mothers of children with suspected autism spectrum disorder during social distancing. Revista Cefac, [S.L.], v. 24, n. 3, p. 1422, 2022. FapUNIFESP (SciELO). http://dx.doi.org/10.1590/1982-0216/20222431422. Disponível em: https://www.scielo.br/j/rcefac/a/C7n7kNhrzRrfNGCfytRZGpm/?lang=en. Acesso em: 19 abr. 2023. https://repositorio.ufrn.br/handle/123456789/52547 https://doi.org/10.1590/1982-0216/20222431422 en Attribution 3.0 Brazil http://creativecommons.org/licenses/by/3.0/br/ application/pdf Revista Cefac

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