Fotografias do cotidiano: participação de crianças com síndrome congênita do zika durante a pandemia da Covid-19

Introduction: The COVID-19 pandemic began almost five years after the epidemic caused by the Zika virus. In Brazil, more than 3500 children with Congenital Zika Syndrome (CZS) face barriers that affect participation in daily activities, which can be aggravated in health emergency situations. Obje...

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Autor principal: Coutinho, Dinara Laiana de Lima Nascimento
Outros Autores: Hull, Egmar Longo
Formato: Dissertação
Idioma:pt_BR
Publicado em: Universidade Federal do Rio Grande do Norte
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Endereço do item:https://repositorio.ufrn.br/handle/123456789/52398
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id ri-123456789-52398
record_format dspace
institution Repositório Institucional
collection RI - UFRN
language pt_BR
topic Síndrome congênita do Zika
Crianças
Photovoice
Participação
Covid-19
CNPQ::CIENCIAS DA SAUDE
spellingShingle Síndrome congênita do Zika
Crianças
Photovoice
Participação
Covid-19
CNPQ::CIENCIAS DA SAUDE
Coutinho, Dinara Laiana de Lima Nascimento
Fotografias do cotidiano: participação de crianças com síndrome congênita do zika durante a pandemia da Covid-19
description Introduction: The COVID-19 pandemic began almost five years after the epidemic caused by the Zika virus. In Brazil, more than 3500 children with Congenital Zika Syndrome (CZS) face barriers that affect participation in daily activities, which can be aggravated in health emergency situations. Objective: Explore the daily lives of children during the Covid-19 pandemic through photographs captured by mothers. Methodology: This is a participatory action research that used photovoice to collect information from Brazilian children with SCZ through the perception of their mothers. Seven participants acted as co-researchers, all were young mothers of children with SCZ aged between 2 and 5 years. Some phases of the research were carried out online, others by phone call and included the following steps: 1) recruitment of participants; 2) Individualized training; 3) Sociodemographic Interview; 4) Pilot; 5) Training for the realization of Photovoice; 6) Capture of photos by the participants; 7) Focus group to contextualize the photos; 8) Transcription and data analysis; 9) Validation of analyzes by mothers. Results: The analysis of the content, extracted from the mothers' statements about the photos, revealed five categories that represent aspects that influenced the children's participation, they were: Preferences for Participation, Family Relationships, Access to Health, Access to Education and Social Isolation. To represent the children's preferences, the mothers reported situations that refer to their children's desire to play with other children and family members, as well as to have autonomy. The family environment was characterized as a happy and peaceful place, which offers security for children. Therapies were cited as essential services for the child's development, and the absence caused harm to the child's health. Education was commented on in terms of accessibility to remote teaching, lack of physical structure and pedagogical preparation. Finally, the children's routine was directly affected by social isolation, marked by the interruption of therapies, medical consultations and behavioral changes in children. Conclusion: The photographs captured various aspects of the routine of children with SCZ who were impacted by the Covid-19 pandemic. The data reinforce the importance of welcoming and trying to reduce the negative effects of social isolation, so that it is possible to offer comprehensive care to children with SCZ, with a view to promoting participation and global health. In addition to emphasizing the effectiveness of listening to mothers' opinions, placing them as protagonists of the study.
author2 Hull, Egmar Longo
author_facet Hull, Egmar Longo
Coutinho, Dinara Laiana de Lima Nascimento
format masterThesis
author Coutinho, Dinara Laiana de Lima Nascimento
author_sort Coutinho, Dinara Laiana de Lima Nascimento
title Fotografias do cotidiano: participação de crianças com síndrome congênita do zika durante a pandemia da Covid-19
title_short Fotografias do cotidiano: participação de crianças com síndrome congênita do zika durante a pandemia da Covid-19
title_full Fotografias do cotidiano: participação de crianças com síndrome congênita do zika durante a pandemia da Covid-19
title_fullStr Fotografias do cotidiano: participação de crianças com síndrome congênita do zika durante a pandemia da Covid-19
title_full_unstemmed Fotografias do cotidiano: participação de crianças com síndrome congênita do zika durante a pandemia da Covid-19
title_sort fotografias do cotidiano: participação de crianças com síndrome congênita do zika durante a pandemia da covid-19
publisher Universidade Federal do Rio Grande do Norte
publishDate 2023
url https://repositorio.ufrn.br/handle/123456789/52398
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spelling ri-123456789-523982023-05-15T19:27:04Z Fotografias do cotidiano: participação de crianças com síndrome congênita do zika durante a pandemia da Covid-19 Coutinho, Dinara Laiana de Lima Nascimento Hull, Egmar Longo http://lattes.cnpq.br/5708431210166444 https://orcid.org/0000-0001-6263-1818 http://lattes.cnpq.br/4886701146385883 Monteiro, Karolinne Souza http://lattes.cnpq.br/9064510807814492 Wiesiolek, Carine Carolina Magalhães, Adriana Gomes https://orcid.org/0000-0002-0279-5930 http://lattes.cnpq.br/5918222264099117 Carrión, Rocío Palomo Síndrome congênita do Zika Crianças Photovoice Participação Covid-19 CNPQ::CIENCIAS DA SAUDE Introduction: The COVID-19 pandemic began almost five years after the epidemic caused by the Zika virus. In Brazil, more than 3500 children with Congenital Zika Syndrome (CZS) face barriers that affect participation in daily activities, which can be aggravated in health emergency situations. Objective: Explore the daily lives of children during the Covid-19 pandemic through photographs captured by mothers. Methodology: This is a participatory action research that used photovoice to collect information from Brazilian children with SCZ through the perception of their mothers. Seven participants acted as co-researchers, all were young mothers of children with SCZ aged between 2 and 5 years. Some phases of the research were carried out online, others by phone call and included the following steps: 1) recruitment of participants; 2) Individualized training; 3) Sociodemographic Interview; 4) Pilot; 5) Training for the realization of Photovoice; 6) Capture of photos by the participants; 7) Focus group to contextualize the photos; 8) Transcription and data analysis; 9) Validation of analyzes by mothers. Results: The analysis of the content, extracted from the mothers' statements about the photos, revealed five categories that represent aspects that influenced the children's participation, they were: Preferences for Participation, Family Relationships, Access to Health, Access to Education and Social Isolation. To represent the children's preferences, the mothers reported situations that refer to their children's desire to play with other children and family members, as well as to have autonomy. The family environment was characterized as a happy and peaceful place, which offers security for children. Therapies were cited as essential services for the child's development, and the absence caused harm to the child's health. Education was commented on in terms of accessibility to remote teaching, lack of physical structure and pedagogical preparation. Finally, the children's routine was directly affected by social isolation, marked by the interruption of therapies, medical consultations and behavioral changes in children. Conclusion: The photographs captured various aspects of the routine of children with SCZ who were impacted by the Covid-19 pandemic. The data reinforce the importance of welcoming and trying to reduce the negative effects of social isolation, so that it is possible to offer comprehensive care to children with SCZ, with a view to promoting participation and global health. In addition to emphasizing the effectiveness of listening to mothers' opinions, placing them as protagonists of the study. Introdução: A pandemia da COVID-19 teve início quase cinco anos após a epidemia causada pelo vírus Zika. No Brasil, mais de 3500 crianças com Síndrome Congênita do Zika (SCZ) enfrentam barreiras que afetam a participação em atividades cotidianas, que podem ser agravadas em situações de emergência sanitária. Objetivo: Explorar o cotidiano das crianças durante a pandemia do Covid-19 através de fotografias capturadas pelas mães. Metodologia: Trata-se de uma pesquisa de ação participativa que utilizou o photovoice para coletar informações de crianças brasileiras com SCZ por meio da percepção de suas mães. Sete participantes atuaram como co-pesquisadoras, todas eram mães jovens de crianças com SCZ com idades entre 2 e 5 anos. Algumas fases da pesquisa foram realizadas de modo online, outras por ligação telefônica e incluiu as seguintes etapas: 1) recrutamento das participantes; 2) Treinamento individualizado; 3) Entrevista Sociodemográfica; 4) Piloto; 5) Treinamento para realização do Photovoice; 6) Captura das fotos pelas participantes; 7) Grupo focal para contextualização das fotos; 8) Transcrição e análise dos dados; 9) Validação das análises pelas mães. Resultados: A análise do conteúdo, extraído das falas das mães sobre as fotos, revelou cinco categorias que representam aspectos que influenciavam a participação das crianças, foram elas: Preferências para Participação, Relações Familiares, Acesso à Saúde, Acesso à Educação e Isolamento Social. Para representar as preferências das crianças, as mães relataram situações que remetem ao desejo dos seus filhos em brincar com outras crianças e com os familiares, assim como de terem autonomia. O ambiente familiar foi caracterizado como um lugar feliz e tranquilo, que oferece segurança para as crianças. As terapias foram citadas como serviços essenciais para o desenvolvimento da criança, e a ausência acarretou prejuízos à saúde da criança. A educação foi comentada em termos de acessibilidade ao ensino remoto, falta de estrutura física e preparação pedagógica. Por último, a rotina das crianças foi diretamente afetada com isolamento social, sendo marcada pela interrupção das terapias, das consultas médicas e mudança comportamental das crianças. Conclusão: As fotografias capturaram vários aspectos da rotina das crianças com SCZ que foram impactadas pela pandemia do Covid-19. Os dados reforçam a importância de acolher e reduzir os efeitos negativos do isolamento social, para possibilite assistência integral às crianças com SCZ, com vistas a promover a participação e saúde global. Além de enfatizar a eficácia em escutar a opinião das mães, colocando-as como protagonistas do estudo. 2023-05-15T19:26:20Z 2023-05-15T19:26:20Z 2022-10-10 masterThesis COUTINHO, Dinara Laiana de Lima Nascimento. Fotografias do cotidiano: participação de crianças com síndrome congênita do zika durante a pandemia da Covid-19. Orientador: Egmar Longo Hull. 2022. 68f. Dissertação (Mestrado em Ciências da Reabilitação) - Faculdade de Ciências da Saúde do Trairi, Universidade Federal do Rio Grande do Norte, Natal, 2022. https://repositorio.ufrn.br/handle/123456789/52398 pt_BR Acesso Aberto application/pdf Universidade Federal do Rio Grande do Norte Brasil UFRN PROGRAMA DE PÓS-GRADUAÇÃO EM CIÊNCIAS DA REABILITAÇÃO