Fotografias do cotidiano: participação de crianças com síndrome congênita do zika durante a pandemia da Covid-19
Introduction: The COVID-19 pandemic began almost five years after the epidemic caused by the Zika virus. In Brazil, more than 3500 children with Congenital Zika Syndrome (CZS) face barriers that affect participation in daily activities, which can be aggravated in health emergency situations. Obje...
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| Formato: | Dissertação |
| Idioma: | pt_BR |
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Universidade Federal do Rio Grande do Norte
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| Endereço do item: | https://repositorio.ufrn.br/handle/123456789/52398 |
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| Resumo: | Introduction: The COVID-19 pandemic began almost five years after the epidemic
caused by the Zika virus. In Brazil, more than 3500 children with Congenital Zika
Syndrome (CZS) face barriers that affect participation in daily activities, which can be
aggravated in health emergency situations. Objective: Explore the daily lives of children
during the Covid-19 pandemic through photographs captured by mothers. Methodology:
This is a participatory action research that used photovoice to collect information from
Brazilian children with SCZ through the perception of their mothers. Seven participants
acted as co-researchers, all were young mothers of children with SCZ aged between 2 and
5 years. Some phases of the research were carried out online, others by phone call and
included the following steps: 1) recruitment of participants; 2) Individualized training; 3)
Sociodemographic Interview; 4) Pilot; 5) Training for the realization of Photovoice; 6)
Capture of photos by the participants; 7) Focus group to contextualize the photos; 8)
Transcription and data analysis; 9) Validation of analyzes by mothers. Results: The
analysis of the content, extracted from the mothers' statements about the photos, revealed
five categories that represent aspects that influenced the children's participation, they
were: Preferences for Participation, Family Relationships, Access to Health, Access to
Education and Social Isolation. To represent the children's preferences, the mothers
reported situations that refer to their children's desire to play with other children and
family members, as well as to have autonomy. The family environment was characterized
as a happy and peaceful place, which offers security for children. Therapies were cited as
essential services for the child's development, and the absence caused harm to the child's
health. Education was commented on in terms of accessibility to remote teaching, lack of
physical structure and pedagogical preparation. Finally, the children's routine was directly
affected by social isolation, marked by the interruption of therapies, medical consultations
and behavioral changes in children. Conclusion: The photographs captured various
aspects of the routine of children with SCZ who were impacted by the Covid-19
pandemic. The data reinforce the importance of welcoming and trying to reduce the
negative effects of social isolation, so that it is possible to offer comprehensive care to
children with SCZ, with a view to promoting participation and global health. In addition
to emphasizing the effectiveness of listening to mothers' opinions, placing them as
protagonists of the study. |
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