Percepção do paciente com doença de Parkinson: contribuições para a formação integral em saúde
Parkinson's disease (PD) is a chronic neurodegenerative disease characterized by the manifestation of motor symptoms, the main ones being: bradykinesia, muscle rigidity and resting tremor; as well as non-motor symptoms, such as depression, pain, sleep disturbance and cognitive impairment. Sy...
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| Formato: | Dissertação |
| Idioma: | pt_BR |
| Publicado em: |
Universidade Federal do Rio Grande do Norte
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| Endereço do item: | https://repositorio.ufrn.br/handle/123456789/47629 |
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| Resumo: | Parkinson's disease (PD) is a chronic neurodegenerative disease characterized
by the manifestation of motor symptoms, the main ones being: bradykinesia,
muscle rigidity and resting tremor; as well as non-motor symptoms, such as
depression, pain, sleep disturbance and cognitive impairment. Symptoms that
have a psychosocial impact on the lives of patients with PD. Most health actions
are based on the biomedical model, which overvalues the disease and its
symptoms, and in the case of PD, it focuses especially on motor symptoms and
their treatment. It is important to give voice to the chronically ill based on their
weaknesses and needs and thus foster possibilities of intervention in the healthdisease-care processes. This work aims to promote comprehensive health
education based on the perception of PD patients about their disease process
and treatment. This is qualitative, descriptive and analytical research based on
the Phenomenological Method. Research data were collected through individual
interviews using the semi-structured interview script McGill MINI – Narrative of
illness. The participants were 7 patients aged between 48 and 73 years, treated
at the Movement Disorder Outpatient Clinic of the Onofre Lopes University
Hospital, Natal, Rio Grande do Norte. From the reports obtained, three thematic
nuclei emerged that concern the patient before his diagnosis, living with the signs
and symptoms of the disease and its treatment and the psychosocial impact of
the disease and health care. Patients report psychological suffering with an
impact on their daily lives and on their social and work relationships, which, in
general, can harm their relationship with the illness itself. It brings a reflection on
the importance of teamwork and a broad view of the subject, as well as the
strengthening of health education from the perspective of comprehensive health care. |
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