Compreendendo o cuidado da mãe à criança com síndrome congênita pelo zika vírus no contexto familiar
The Zika Virus Congenital Syndrome constitutes a group of congenital cerebral anomalies that occurs in children and that can cause microcephaly, retarded cognitive, motor and speech development; cerebral palsy; epilepsy; irritability; dysphagia; and changes in vision and hearing. These cases requ...
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| Formato: | doctoralThesis |
| Idioma: | pt_BR |
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Brasil
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| Endereço do item: | https://repositorio.ufrn.br/jspui/handle/123456789/28627 |
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| Resumo: | The Zika Virus Congenital Syndrome constitutes a group of congenital cerebral anomalies
that occurs in children and that can cause microcephaly, retarded cognitive, motor and speech
development; cerebral palsy; epilepsy; irritability; dysphagia; and changes in vision and
hearing. These cases require for care to be focused on the child´s development through early
stimulation and on the special needs resulting from the sequels of the neurologic
complications. Knowledge of the care that family members provide to these children is
particularly important to nurses in the Family Health Service that are responsible for care in
the home environment, and for the development of a theoretical explanation for the
phenomenon of family care. The aim of the study was to understand the family care process
with the child that has Congenital Syndrome by Zika Virus. An analytic qualitative study was
conducted using the Grounded Theory approach by Strauss and Corbin, and based on the
theoretical / philosophical reference of care by Leonardo Boff and on the Adaptation Nursing
theory of Callista Roy. The study was conducted at the Child Rehabilitation Center in NatalRN, Brazil, with 19 participants in four sample groups: twelve mothers, three fathers, two
physical therapists and two nurses, determined by the principle of theoretical sampling. Data
were collected through in-depth interviews conducted April to October 2018, using the
constant comparison method for the analysis. The atlas ti software 8,0 version was used for
data analysis and the open, axial and selective coding procedures directed the construction of
the theoretical model of the phenomenon and its categories of interactions, conditions and
consequences. The central category ―Comprehending the mother’s care of the child with the
Zika Vírus Congenital Syndrome in the family context‖ emerged from five categories:
―Revealing the mother-centered family care‖; ―Identifying the maternal attachment that
determines care‖; ―Identifying the factors that hinder the mother’s care‖; ―Recognizing the
child’s evolutions in the face of early stimulation care‖; and ―Recognizing losses due to the
absence of early stimulation to the child‖. Based on these components, a theoretical
explanatory model of the phenomenon was constructed. The model indicates that the mothercentered care of the child within the family context causes maternal overload and exhaustion
as a result of the constant care required and her isolation in this function, and that this also
hinders the early stimulation actions. However when the early stimulation is conducted by the
family, the developmental progress of the child´s abilities is observed. The theoretical model
constructed in this study informs the nursing care to these children in the context of the
Family Health Strategy for the strengthening of a support network for the mothers in the
health service centers and for the care of the child´s special needs that result from the
complications. Therefore, the study is a contribution to the development of primary health
care and of nursing. science. |
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