"O blog deveria ser complemento das TARVs": divulgação científica, compartilhamento de informações e a experiência com o HIV/AIDS

Blogs produced by people living with disease and long-term suffering can provide rich descriptions of practices, customs and social perceptions of the health-disease process. Thus, this virtual space can be a new setting of health promotion, sharing of information and experiences with the disease. T...

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Detalhes bibliográficos
Autor principal: Borges, Raul Elton Araújo
Outros Autores: Melo, Lucas Pereira de
Formato: Dissertação
Idioma:por
Publicado em: Brasil
Assuntos:
HIV
Endereço do item:https://repositorio.ufrn.br/jspui/handle/123456789/25039
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Descrição
Resumo:Blogs produced by people living with disease and long-term suffering can provide rich descriptions of practices, customs and social perceptions of the health-disease process. Thus, this virtual space can be a new setting of health promotion, sharing of information and experiences with the disease. Therefore, this study aimed to analyze the knowledge and experiences shared virtually in a Brazilian blog about HIV/AIDS. This is a socio-anthropological qualitative study, carried out through virtual ethnography. Forty-two posts made by the author from January 2014 to July 2016 published in the “Papers” section of the blog were used. Data included texts produced by the blogger and the 4,670 comments from page visitors. They were recorded in spreadsheets and tables and later analyzed through the thematic coding technique. Three categories emerged from the thematic analysis of empirical material: (1) “I took my 'reagent' and I am dissecting this blog”: the blog as a gateway to the social world of HIV/AIDS; (2) “Be cool, you are doing very well with these results”: scientific dissemination, sharing information and improving life with HIV/AIDS; and, (3) “I have never seen so much heresy in a single post”: about the conflicts and resistances in the blog. Narratives highlighted an “initiation ritual” into the virtually mediated social HIV/AIDS world for newly diagnosed followers, built on veterans’ blog experience. Thus, the social medicalization found in the statements by the blogger and visitors of the page strongly geared to the adherence to the treatment and the so-called “safe” sex stands out. In addition, comments on the author’s posts produce an environment of scientific dissemination, sharing of information and experiences that assist in the process of normalization of life with HIV/AIDS. Therefore, new modes of subjectivity and networks of “production/consumption” of scientific information from the blog experience are observed and are fundamental in the construction of an “improved” life with the disease. However, the medicalization of discourses may be inclusive for some, but excluding for others.