O cuidador familiar de pessoa com doença de Alzheimer: história oral de vida
The aim of the present study was to understand the feelings and the difficulties faced by the family caregiver in the care of the person affected by Alzheimer`s Disease (AD). It is a descriptive, exploratory study with a qualitative approach, using the oral life history proposed by B...
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Enfermagem. Cuidador familiar. Doença de Alzheimer. História oral Nursing Family caregiver Alzheimer`s disease Oral history. CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM |
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Enfermagem. Cuidador familiar. Doença de Alzheimer. História oral Nursing Family caregiver Alzheimer`s disease Oral history. CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM Aguiar, Virginia Simonato O cuidador familiar de pessoa com doença de Alzheimer: história oral de vida |
| description |
The aim of the present study was to understand the feelings and the difficulties faced
by the family caregiver in the care of the person affected by Alzheimer`s Disease
(AD). It is a descriptive, exploratory study with a qualitative approach, using the oral
life history proposed by Bom Meihy as the method. Data collection was conducted in
the Basic Health Unit of Candelaria, located in Natal -RN, with five collaborators that
carry out the role of family caregivers for people affected by Alzheimer`s disease (AD)
and are members of the Group "Caring for those who Care". Caregi vers who resided
with the affected family member for at least one year were selected for the study, and
as a collection tool, it was opted to use semi-structured interviews via a script of open
questions, recorded by permission of the collaborators, then t ranscribed and
subsequently returned to respondents for checking the contents described. To
analyze the results, the collaborators narrative technique was used in conjuction
with the specific literature on the subject.The discussions were organized around five
themes inherent to the guiding questions, and defined as follows: the incorporation of
the role of the family caregiver; life before and after assuming the role of caregiver,
the caregiver`s feelings and attitudes after assuming the care, difficulti es in caring,
participation of the group as a foundation for caregivers. The stories showed many
difficulties in the daily routine of the caregivers, and also that their participation in the
group "Caring for those who Care" helps them in maintaining the q uality of their lives.
The results open possibilities for the construction of new forms of approach and care
for the people who fulfill the role of family caregiver contributing to strengthening of
subsidies that help them better face the daily difficulti es.This study helped shed light
on the fact that being a family caregiver of a person affected by AD is a suffered,
exhausting and stressful condition involving much self-denial in one´s life. The
situation experienced by these collaborators is considered a public health issue, and
thus highlights the urgency for governmental political -social actions, besides the
programs of care and health promotion for this target group. |
| author2 |
Menezes, Rejane Millions Viana |
| author_facet |
Menezes, Rejane Millions Viana Aguiar, Virginia Simonato |
| format |
masterThesis |
| author |
Aguiar, Virginia Simonato |
| author_sort |
Aguiar, Virginia Simonato |
| title |
O cuidador familiar de pessoa com doença de Alzheimer: história oral de vida |
| title_short |
O cuidador familiar de pessoa com doença de Alzheimer: história oral de vida |
| title_full |
O cuidador familiar de pessoa com doença de Alzheimer: história oral de vida |
| title_fullStr |
O cuidador familiar de pessoa com doença de Alzheimer: história oral de vida |
| title_full_unstemmed |
O cuidador familiar de pessoa com doença de Alzheimer: história oral de vida |
| title_sort |
o cuidador familiar de pessoa com doença de alzheimer: história oral de vida |
| publisher |
Universidade Federal do Rio Grande do Norte |
| publishDate |
2014 |
| url |
https://repositorio.ufrn.br/jspui/handle/123456789/14795 |
| work_keys_str_mv |
AT aguiarvirginiasimonato ocuidadorfamiliardepessoacomdoencadealzheimerhistoriaoraldevida |
| _version_ |
1773959274261643264 |
| spelling |
ri-123456789-147952017-11-01T14:46:24Z O cuidador familiar de pessoa com doença de Alzheimer: história oral de vida Aguiar, Virginia Simonato Menezes, Rejane Millions Viana http://lattes.cnpq.br/7383161432730077 http://lattes.cnpq.br/9130470143761299 Oliveira, Josineide Silveira de http://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4796363D5 Germano, Raimunda Medeiros http://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4721938D8 Menezes, Rejane Maria Paiva de http://lattes.cnpq.br/5190926575194616 Enfermagem. Cuidador familiar. Doença de Alzheimer. História oral Nursing Family caregiver Alzheimer`s disease Oral history. CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM The aim of the present study was to understand the feelings and the difficulties faced by the family caregiver in the care of the person affected by Alzheimer`s Disease (AD). It is a descriptive, exploratory study with a qualitative approach, using the oral life history proposed by Bom Meihy as the method. Data collection was conducted in the Basic Health Unit of Candelaria, located in Natal -RN, with five collaborators that carry out the role of family caregivers for people affected by Alzheimer`s disease (AD) and are members of the Group "Caring for those who Care". Caregi vers who resided with the affected family member for at least one year were selected for the study, and as a collection tool, it was opted to use semi-structured interviews via a script of open questions, recorded by permission of the collaborators, then t ranscribed and subsequently returned to respondents for checking the contents described. To analyze the results, the collaborators narrative technique was used in conjuction with the specific literature on the subject.The discussions were organized around five themes inherent to the guiding questions, and defined as follows: the incorporation of the role of the family caregiver; life before and after assuming the role of caregiver, the caregiver`s feelings and attitudes after assuming the care, difficulti es in caring, participation of the group as a foundation for caregivers. The stories showed many difficulties in the daily routine of the caregivers, and also that their participation in the group "Caring for those who Care" helps them in maintaining the q uality of their lives. The results open possibilities for the construction of new forms of approach and care for the people who fulfill the role of family caregiver contributing to strengthening of subsidies that help them better face the daily difficulti es.This study helped shed light on the fact that being a family caregiver of a person affected by AD is a suffered, exhausting and stressful condition involving much self-denial in one´s life. The situation experienced by these collaborators is considered a public health issue, and thus highlights the urgency for governmental political -social actions, besides the programs of care and health promotion for this target group. O presente estudo teve por objetivo compreender os sentimentos e as dificuldades enfrentadas pelo cuidador familiar no cuidado à pessoa acometida pela Doença de Alzheimer. Trata-se de estudo descritivo, exploratório, com abordagem qualitativa, utilizando como método a história oral de vida, proposto por Bom Meihy. A coleta dos dados foi realizada na Unidade Básica de Saúde de Candelária, situada em Natal-RN, com cinco colaboradores que desempenham papel de cuidadores familiares de pessoas acometidas pela Doença de Alzheimer (DA) e são integrantes do Grupo Cuidando de quem Cuida . Foram selecionados para o estudo, cuidadores que residiam com familiar acometido há pelo menos um ano e, como instrumento de coleta, optou-se por entrevistas semiestruturadas através de roteiro de questões abertas em que as mesmas foram gravadas com permissão dos colaboradores, transcritas na íntegra e posteriormente devolvidas aos entrevistados para conferência dos conteúdos descritos. Para a análise dos resultados, utilizou-se a técnica da narrativa dos colaboradores em interlocução com a literatura específica sobre a temática. As falas foram organizadas em torno de cinco temas inerentes às questões norteadoras e, assim definidos: a incorporação do papel de cuidador familiar; a vida antes e após assumir o papel de cuidador; sentimentos e posicionamentos do cuidador após assumir o cuidado; dificuldades no cuidado; participação do grupo como alicerce para os cuidadores. As histórias mostraram muitas dificuldades na rotina diária de vida desses cuidadores e a manutenção da qualidade de suas vidas, através das participações no Grupo Cuidando de quem Cuida . Os resultados possibilitam a construção de novas formas de abordagem e cuidado às pessoas que desempenham o papel de cuidador familiar, ao contribuir para o fortalecimento de subsídios que auxiliem no enfrentamento real das dificuldades diárias. Tal estudo permitiu compreender que ser cuidador familiar de uma pessoa acometida pela DA é uma condição sofrida, desgastante e estressante envolvendo muitas renúncias em suas vidas. Considera-se a situação vivenciada pelos colaboradores uma questão de saúde pública e, assim, evidencia-se a premência de medidas governamentais de caráter político-social, além de programas de atenção e promoção da saúde ao referido público alvo 2014-12-17T14:47:00Z 2014-01-09 2014-12-17T14:47:00Z 2013-06-26 masterThesis AGUIAR, Virginia Simonato. O cuidador familiar de pessoa com doença de Alzheimer: história oral de vida. 2013. 96 f. Dissertação (Mestrado em Assistência à Saúde) - Universidade Federal do Rio Grande do Norte, Natal, 2013. https://repositorio.ufrn.br/jspui/handle/123456789/14795 por Acesso Aberto application/pdf application/pdf Universidade Federal do Rio Grande do Norte BR UFRN Programa de Pós-Graduação em Enfermagem Assistência à Saúde |