O cuidador familiar de pessoa com doença de Alzheimer: história oral de vida
The aim of the present study was to understand the feelings and the difficulties faced by the family caregiver in the care of the person affected by Alzheimer`s Disease (AD). It is a descriptive, exploratory study with a qualitative approach, using the oral life history proposed by B...
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| Formato: | Dissertação |
| Idioma: | por |
| Publicado em: |
Universidade Federal do Rio Grande do Norte
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| Endereço do item: | https://repositorio.ufrn.br/jspui/handle/123456789/14795 |
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| Resumo: | The aim of the present study was to understand the feelings and the difficulties faced
by the family caregiver in the care of the person affected by Alzheimer`s Disease
(AD). It is a descriptive, exploratory study with a qualitative approach, using the oral
life history proposed by Bom Meihy as the method. Data collection was conducted in
the Basic Health Unit of Candelaria, located in Natal -RN, with five collaborators that
carry out the role of family caregivers for people affected by Alzheimer`s disease (AD)
and are members of the Group "Caring for those who Care". Caregi vers who resided
with the affected family member for at least one year were selected for the study, and
as a collection tool, it was opted to use semi-structured interviews via a script of open
questions, recorded by permission of the collaborators, then t ranscribed and
subsequently returned to respondents for checking the contents described. To
analyze the results, the collaborators narrative technique was used in conjuction
with the specific literature on the subject.The discussions were organized around five
themes inherent to the guiding questions, and defined as follows: the incorporation of
the role of the family caregiver; life before and after assuming the role of caregiver,
the caregiver`s feelings and attitudes after assuming the care, difficulti es in caring,
participation of the group as a foundation for caregivers. The stories showed many
difficulties in the daily routine of the caregivers, and also that their participation in the
group "Caring for those who Care" helps them in maintaining the q uality of their lives.
The results open possibilities for the construction of new forms of approach and care
for the people who fulfill the role of family caregiver contributing to strengthening of
subsidies that help them better face the daily difficulti es.This study helped shed light
on the fact that being a family caregiver of a person affected by AD is a suffered,
exhausting and stressful condition involving much self-denial in one´s life. The
situation experienced by these collaborators is considered a public health issue, and
thus highlights the urgency for governmental political -social actions, besides the
programs of care and health promotion for this target group. |
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